15 Nov 2026, 08:01 PM

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Ali Stevens’ daughter was a baby when they discovered she has a syndrome which causes deafblindness. There’s no roadmap for change – but what gets her through is the same as for any parentMy daughter Poppy is five. She’s energetic and curious, loves dresses, books and creating new things and spends a lot of time playing with her big sister, Evie.When Poppy was born, my husband, Ben, and I were focused on the usual joys of welcoming a new baby. A routine hearing screening showed something wasn’t quite right, although initially we were told it was probably fluid in her ears. Continue reading...

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